I'm 25 weeks today :) getting big! My belly is very low, "pointy" and "sticky-outty" for a lack of better description...my best girlfriend is also pregnant, 21 weeks, and her belly is even and pouchy; amazing how different they can carry! I guess you'd say I have a torpedo belly :)
I had an appointment with my Periontologist today in the big city about an hour away. I have to see him every 4 weeks for now until I'm about 32 weeks along. He's a great doc, very compassionate and understand, and totally supportive of what we have decided to do.
I found out that we can NOT donate his organs :( that is really kinda sad, because we thought it would be awesome if Mark's organs could help another little baby live a healthy life. Apparantly because of the gene mutation, this can cause issues. I also asked about cord blood. My mother had said that she would give this gift to us if it was do-able. But apparantly it isn't. Because the cord blood contains original stem cells, it would contain the gene mutation, therefore not good for treatment if ever needed. Again, that really is too bad. It would be somwhat nice to know Mark's blood was always there. He did say however, that he THINKS the bone marrow might be usable, and hence donateable. He has to look into this further, as he is not sure. He said if IS, he would set it all up for us :) I really hope so! I'd love to be able to help a little babe live from our babes life.
My OB had told me 2 weeks ago that I was measuring almost 4 weeks big, which would indicate polyhyramnios, which is not a good thing. Today he measured me and I was only 26 cm so only one week big! this is totally normal :) soooo happy about that.
I can't wait to see Mark on the US Monday! Once I turn 32 weeeks, I have to have an US every 1.5 weeks to determine Mark's head size and my fluid levels. Once his head gets to be 35% over the norm, they will induce. I wish they did the DVD US here in Canada...but they don't. We should however, get a pic if we ask. I will ask for several! I want as many as we can get!
We were told by the radiologist when we were officially diagnosed at 20 weeks, that Mark had 98% chance of TD and 2% chance that it was not...but I was told today that it was in fact quite less than that. He said that the 2% diagnosis failure rate was the radiologists INITIAL thoughts. He said that after that US, there were 6 specialists that looked and all concurred without a doubt that this was in fact TD. I told him that we would not give up hope, that we will keep praying for a miracle...and he said that being a Catholic man, he knows miracles happen, and hopes beyond hope that he is wrong.
I'll never catch up...
12 years ago
Hi, cohen's mommy here. Please know that you and your sweet little boy is and will always be constantly in my prayers. I have great hope that Mark will defy the odds and share Cohen's miraculous story.
ReplyDeleteHi Mama. This is Malachi's mama from DS(he passed from sids). I just saw your comment and came here. I am here to tell you that our God is greater than ANY of this!! I promise this to you. They told me many things about Malachi and he defied ALL of them. Blv God with ALL that you have he will not fail you. You must walk in this faith, it is hard and a battle, but it can be done. Please email me anytime, Mama. <3
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