I now have until wednesday at 9:30am before the induction process begins. I'm scared, sad, and I hate the unknown. I had planned to have Mark around for at least another 4 weeks or so.
I have his little outfit, which I had to alter. He's only going to be 29 weeks, so around 2 lbs. I found a 4-5 lb preemie outfit which I cut the legs and arms and hemmed so hopfully it will fit him somewhat. We have a hand print plaster kit. We have a charm braclet with his name...the charms are a cross and an angel. We have a little box for piece of his hair. We have the camera and camcorder ready. I made him an Angels Pocket blankie to be carried to the funeral home in. I made it out of cotton velour and minkee blankie. It is esentially a small blanket with a pocket so you can wrap them up tight in. I also have a pregnancy/birth journal called "In the Company of Angels". It's a baby book for angels. It is still enroute, I hope it gets here soon.
I have 2 more days with my babe...I have been trying to have special private time with him. I have told him how sorry I am for this. I have told him how much we love him and always will. I have told him I cannot wait to kiss him and touch him. I have told him I cannot wait to see him again in heaven.
I'll never catch up...
12 years ago
Oh mama - I'm thinking of you and praying for you, your family, and little Mark. I'm in tears tonight reading that your journey with him is being cut short. I'm so glad you were given a few days to prepare for his arrival and gather some keepsakes. My heart goes out to your family. God speed little Mark.
ReplyDeleteI am so sorry mama, I am in tears and praying for you. It is good they have given you some time to prepare. You are a very strong mama! Praying for peace and God's unfailing love to comfort/hold you and baby Mark in this very difficult time.
ReplyDeleteI'm so sorry for this - you are going to be so abundantly blessed by this little baby Mark, and God will bring you through it. Enjoy your time with your precious baby, and don't let anyone tell you that any of this is less than that. This is precious. This is true love.
ReplyDeleteI am not sure if you have some one for photos but this group does not charge and has lots of volunteers http://www.nowilaymedowntosleep.org/locate_photographer/
ReplyDeleteBig hugs to you!
I'm from DS and I just wanted to say that I'm hoping the doctors are wrong and you have much more time with your precious Mark. You'll be in my thoughts, mama. Many, many hugs to you. I'm so sorry.
ReplyDeleteI am praying that God gives you a miracle, even if that's just a few hours of time to hold your baby boy and tell him you love him. Be strong for your babies and God will get you through this and Mark will be waiting for you when your work here is done. You are loved, you are strong, you can get through this.
ReplyDeleteI hope you are able to get someone from NILMDTS, please check into it, those photos will be invaluable to you in the coming months and years. Here is their link again:
http://www.nowilaymedowntosleep.org/
There's a link to find a photographer on the site. Hang in there.
Our arms are wrapping around you and God's Arms are holding you up and carrying you through this.
Lots of love,
:(
Alicia
I am September from DS.
ReplyDeleteI am praying for comfort and strength for you and the rest of your family during this very difficult time.
As I sit here crying for your family and emphasizing with your pain, I wish to offer you hope and comfort. My sister went through this exact same experience. Marissa was born in November of 2002, 3 month premature. Her heart beat for 55 minutes, and she is much loved and missed. Her siblings, parents, and extended family celebrate her short life ever year. I pray for you as you process through the grief of this terrible dwarfism that snatches the innocent love of a much loved child. If you would like to contact someone who has lived through the difficulty of TD, my sister Sarah would be more than welcome to be in contact with you. (Sarah Jordan, thosejordans@yahoo.com)
ReplyDeleteGod bless your grieving heart.
I heard about you from a mom on DS. My baby was given a fatal diagnosis in Dec 2008 and we carried her to term. She was born March 2009. I know it can be hard and I'm praying that you get some time with your little boy.
ReplyDeletepraying for you and your family. I have been lifting you up in prayer almost continuously today. I read your story for the first time, very early this morning, and posted a link on Facebook. There is a whole network of friends lifting you up as you experience what will most likely be one of the most difficult days of your life. I pray that you do, indeed, have as much time as possible with your little angel, and I pray peace over you and your entire family as he joins his Heavenly Father. God bless you, and may he give you the strength to make it through this, and make the best out of this situation.
ReplyDeleteI dont know you and you don't know me...but your blog has absolutely touched me and I sat here this morning crying through the whole thing putting myself in your shoes. You are a strong person and I pray you got to hold your baby boy today and look into his eyes. You did the right thing by carrying him as long as possible and my heart goes out to you and your family. Everything happens for a reason and God has a plan...somehow someway...this works into his plan.
ReplyDeleteI'm praying for you, Mama. I have no words of comfort but please know that I am grieving for you and precious little Mark.
ReplyDeleteI am praying for you and your family. I pray that God gives you comfort and strength during this difficult time.
ReplyDeleteI have been thinking and praying for you. I am so sorry that you are going through this. Praying that God comforts you and your family through this difficult time.
ReplyDeleteI am Fashionably Green Baby on DS and I have been following baby Marks story since you first posted about his diagnosis. I have been thinking of you each day since and I hope that you were surrounded by family and friends during your induction yesterday. So many people are touched by your story and by Marks life. Many positive thoughts are with you and your family.
ReplyDeleteBritney